Other content tagged: news
COVID-19 – Risks for preterm born infants: An interview with Professor Doctor Christoph Bührer
COVID-19 and its distribution is on everyone‘s lips and speculations run high. Especially older people and persons with a pre-existing medical condition appear to be develop a serious illness more often than others (WHO). This might leave parents-to-be, parents of preterm born infants and former preterms worrying. We talked to Professor Doctor Christoph Bührer, Medical Director Department of Neonatology, Charité Berlin about the risks he sees for unborn babies, preterm born infants and preterm born adults. …
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Workshop: Implementation of the European Standards of Care for Newborn Health
What can be done to implement the European Standards of Care for Newborn Health (ESCNH)? This is a question that does not only concern EFCNI but also national parent organisations. At the ESCNH workshop in Munich parent representatives from all over Europe, presented their plans and actions to implement the standards in their country, giving each other new ideas and support. EFCNI started to organise the workshops regularly to support the parent organisations network…
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11 Months – 11 Topics – 1 Goal
In its 5th year, our communication campaign 11 Months – 11 Topics continues to provide overviews on the 11 different standard topics but will also offer new, interactive features that shall support the dissemination and implementation process. The campaign 11 Months – 11 Topics took off in 2016 and aims at reaching out explicitly to health professionals and policymakers. Yet, also laypersons who are to benefit from the dissemination of the standards, in the long run, namely the preterm babies…
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EFCNI’s global initiative The Global Alliance for Newborn Care – GLANCE – is taking shape
One year ago, we went public about the founding of GLANCE, the Global Alliance for Newborn Care for the first time and shared the news about this big endeavour with our network. A lot has happened since then and we were delighted to present with our supporters and fellow organisations, how much we were able to realise in regards to our primary objectives with GLANCE. It was our pleasure to present the many small and big steps we managed to…
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European Standards of Care for Newborn Health – One year anniversary
We reached a lot, it was a long way. In November it has been exactly one year since the European Standards of Care for Newborn Health had been officially launched in the European Parliament in Brussels. 5 years of hard preparing work had come to a close. Yet, this marked the beginning of the next big steps: disseminating and implementing the standards! For a year, we have been on the roll with the "Standards roadshow" all over Europe - and…
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Become a patient expert and play an active role in the development of clinical trials
c4c(conect4children) is a large collaborative European network that aims to facilitate the development of new drugs and other therapies for the entire paediatric population. In this sense, the voices of children, young people and their families are a pivotal part of the innovative approach of c4c project. It places patients at the centre and will assign them an active role in the development of the different clinical trials that are going to be conducted…
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5th Global Summit for Preemies by Neišnešiotukas in Vilnius
The 5th Global Summit for Preemies in Vilnius, Lithuania – focusing on the European Standards of Care for Newborn Health – took place at the beginning of December. Together with Asta Radzevičienė (chairwoman, Preemies Parent Association Neišnešiotukas) the EFCNI Chairwoman Silke Mader welcomed healthcare professionals, parent organisations, NGOs, policy makers, payers and media at the 5th Global Summit for Preemies. Among the guests were the Minister of Health of the Republic of Lithuania Aurelijus Veryga,…
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One year anniversary of the European Standards of Care for Newborn Health
We reached a lot, it was a long way. In November it has been exactly one year since the European Standards of Care for Newborn Health had been officially launched in the European Parliament in Brussels. 5 years of hard preparing work had come to a close. Yet, this marked the beginning of the next big steps: disseminating and implementing the standards! For a year, we have been on the roll with the "Standards roadshow"…
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World Prematurity Day 2019 – A big campaign for small babies
“Born too Soon: Providing the right care, at the right time, in the right place” Worldwide, about 15 million babies are born preterm every year. That means approximately a baby out of 10 is a preterm baby and the numbers are rising. With the complications resulting from preterm birth being the leading cause of death among children under 5 years of age, which account for 1 million deaths per annum, preterm birth is a global, pressing issue. It puts emotional and…
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