Other content tagged: news
Tackling bronchopulmonary dysplasia (BPD) to improve preterm health
World Prematurity Day (WPD) on 17 November has become a symbol for the challenges of preterm birth and for improving the situation of affected infants and their families. On this occasion, Professor Luc Zimmermann, Johanna Kostenzer PhD, and Silke Mader (all EFCNI) have written an editorial for the American Journal of Physiology-Lung Cellular and Molecular Physiology. The article focuses on the challenges caused by bronchopulmonary dysplasia (BPD) - the most common cause of chronic lung disease in infancy. To…
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Every Newborn – an action plan to end preventable deaths
On 3 September, the Every Newborn Action Plan (ENAP), a comprehensive, multi-partner initiative, launched its roadmap with their new 2020-2025 targets to end preventable stillbirths and newborn deaths in a digital live event. With this plan, they call on all stakeholders to take action to improve access to services and the quality of care for all pregnant women and newborns. ENAP was endorsed by 194 countries at the World Health Assembly in 2014 an developed…
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Track your preterm baby’s milestones
Baby+ a baby tracking app for premature babies and their parents Baby+, the popular baby tracking apps, is now offering new content particularly targeted at the questions and needs of parents of preterm babies. EFCNI is honoured to have supported the developers of the Baby+ app with 20 articles dedicated to this topic. Parents as well as family members or friends can now inform themselves about a wide range of questions concerning preterm birth via…
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Warm welcome to Sanofi Pasteur as Premium Partner of EFCNI
We are happy to announce that Sanofi Pasteur is joining forces with EFCNI for a new RSV-partnership. We are pleased to begin work with Sanofi and look forward to the collaboration! Sanofi Pasteur comes to us with a focus on the prevention of Respiratory Syncytial Virus in all infants. As an organization, we have worked hard to address RSV in babies who are born at high risk – those born prematurely or with health…
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“Impact of Coronavirus/COVID-19 on special/intensive care for newborns – a parents’ perspective”
The worldwide study “Impact of Coronavirus/COVID-19 on special/intensive care for newborns – a parents’ perspective” is unique: It aims at exploring parents’ experiences related to the challenges caused by the current pandemic regarding the care of and access to their newborn baby – voices that are often overheard. The Coronavirus/COVID-19 pandemic creates exceptional challenges, especially for the care of the most vulnerable groups of patients – such as sick and preterm born children. It is therefore important to explore parents’…
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Study to evaluate the health and quality of life of adults born preterm
The Institute of Public Health of the University of Porto (ISPUP) launched “HAPP-e: Health of Adult People born Preterm – an e-cohort pilot study” to study the health and quality of life of adults born preterm worldwide, using digital tools. Adults with a history of preterm birth represent a growing share of the population. Evidence shows that the majority of preterm infants adapt extremely well during the transition into adulthood. However, a significant part remains at higher risk for neurologic,…
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Neonatal And Children’s Brain Consortium in Ireland (NBCI) is looking for research participants
If you are a parent or family member of an infant who received cooling treatment, please consider taking part in research called COHESION, a project of the Neonatal And Children's Brain Consortium in Ireland (NBCI) . The aim of COHESION is to develop a Core Outcome Set for use in clinical trials. The study is conducted by Fiona Quirke a PhD student from the National University of Ireland Galway, who is studying the infant brain for COHESION. Fiona Quirke has…
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GLANCE releases new video series for Zero Separation
Can a mother breastfeed, if she has COVID-19? And what can a mother do, if she is seperated from her baby in the neonatal ward? These are currently the two most common questions asked by parents of preterm babies worldwide. Denise Suguitani is the executive director for Prematuridade.com, the Brazilian Parents of Preemies Association, and shares the experience she gained through her work during the pandemic. She talked about the challenges of COVID-19 in a ZOOM interview with GLANCE. The…
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New parent organisation in our network – A warm welcome to Preemie Connect
A warm welcome to Preemie Connect, a new parent organisation that joined our network! Preemie connect is founded and run by Tasmin Bota, the mother of a baby born preterm in South Africa. Together with EFCNI’s and GLANCE’s long-term partner the African Foundation for Premature Babies and Neonatal Care (AFPNC) she hosted her first event for World Prematurity Day in 2018 and has been advocating for parental involvement since then. “Hosting that event allowed me to see just how many…
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British Association of Perinatal Medicine’s (BAPM) webinar on prioritising family-integrated Care
Why is it relevant to consider families as primary caregivers of their baby? What are the effects of mother-infant separations and what are the four C’s of closeness? Among others, those were the questions addressed by the webinar of the British Association for Perinatal Medicine (BAPM) – a partner of the FiCare research group. A set of excellent international speakers gave presentations all under the heading of “Getting to Zero Separation: Prioritising Family Integrated Care for our new normal” and…
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